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<p>ਰà©à¨¸à¨¼à©, à¨à©±à¨ ਸਵਿਸ ਮਲà¨à©à¨¨à©à¨¸à¨¼à¨¨à¨² ਹà©à¨²à¨¥à¨à©à¨ ਰ à¨à©°à¨ªà¨¨à©, ਪà©à¨à©à¨à¨ ਦ੠à¨à¨²à©°à¨à¨£à¨¾ ਦਾ ਹਵਾਲਾ ਦਿੰਦ੠ਹà©à¨, ਸਪਾà¨à¨¨à¨² ਮਾਸà¨à©à¨²à¨° à¨à¨à©à¨°à©à¨«à© (SMA) ਡਰੱਠਰਿਸਡà©à¨ªà¨²à¨® ਦ੠à¨à©à¨¨à¨°à¨¿à¨ ਸੰਸà¨à¨°à¨£ ਦ੠ਸ਼à©à¨°à©à¨à¨¤ ਨà©à©° ਰà©à¨à¨£ ਲਠਨà©à¨à¨à© ਫਾਰਮਾ ਦ੠à¨à¨¿à¨²à¨¾à¨« ਸਥਾਠਹà©à¨à¨® ਦ੠ਮੰਠà¨à¨° ਰਹ੠ਹà©à¥¤</p>
<p>ਮੰà¨à¨²à¨µà¨¾à¨° (ਨਵੰਬਰ 5, 2024), ਸਿਹਤ ਸਮà©à¨¹à¨¾à¨ ਨ੠ਦਲà©à¨² ਦਿੱਤ੠à¨à¨¿ à¨à©à¨¨à¨°à¨¿à¨ ਸਪਲਾਠਨà©à©° ਰà©à¨à¨£ ਲਠਰà©à¨à© ਦ੠à¨à¨¾à¨¨à©à©°à¨¨à© à¨à¨¾à¨°à¨µà¨¾à¨ à¨à¨¿à¨«à¨¾à¨à¨¤à© ਦਵਾਠਤੱਠਪਹà©à©°à¨ ਨà©à©° ਸà©à¨®à¨¤ à¨à¨°à¨à© à¨à¨¨à¨¤à¨ ਹਿੱਤਾਠਨà©à©° à¨à¨¤à¨°à© ਵਿੱਠਪਾà¨à¨à¨¦à© ਹà©à¥¤ ਰਿਸਡà©à¨ªà¨²à¨® ਲਠਰà©à¨à© ਦਾ ਪà©à¨à©à¨à¨ 2035 ਤੱਠਪà©à¨°à¨à¨¾à¨µà© ਹà©, à¨à¨¿à¨¸ ਨਾਲ à¨à¨¹ ਪà©à¨°à¨¤à© ਬà©à¨¤à¨² ਲà¨à¨à¨ â¹6 ਲੱਠà¨à¨¾à¨°à¨ à¨à¨° ਸà¨à¨¦à© ਹਨ, à¨à¨¦à©à¨ à¨à¨¿ à¨à¨¤à¨ªà¨¾à¨¦à¨¨ ਦ੠ਲਾà¨à¨¤ ਸà©à¨à¨¾à¨ ਦਿੰਦ੠ਹ੠à¨à¨¿ ਦਵਾਠਸਾਲਾਨਾ 3,024 ਰà©à¨ªà¨ ਤà©à¨ à¨à©±à¨ à¨à©à¨®à¨¤ ਵਿੱਠà¨à¨ªà¨²à¨¬à¨§ à¨à¨°à¨µà¨¾à¨ à¨à¨¾ ਸà¨à¨¦à© ਹà©à¥¤</p>
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<h4 class="sub_head">ਪà©à¨à©à¨à¨ ਦ੠à¨à¨²à©°à¨à¨£à¨¾</h4>
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<p>ਸਿਹਤ ਸਮà©à¨¹ ਠਤ੠ਮਰà©à¨à¨¼ ਪà©à¨°à¨¤à©à¨¨à¨¿à¨§ ਸਰà¨à¨¾à¨° ਨà©à©° à¨à¨¾à¨°à¨¤ ਠਤ੠ਹà©à¨° LMICs ਵਿੱਠਦà©à¨°à¨²à©±à¨ ਬਿਮਾਰà©à¨à¨ ਦ੠ਮਰà©à¨à¨¼à¨¾à¨ ਨà©à©° ਦਵਾà¨à¨à¨ ਦਾ à¨à¨¤à¨ªà¨¾à¨¦à¨¨ ਠਤ੠ਸਪਲਾਠà¨à¨°à¨à© ਵਿà¨à¨¾à¨¸à¨¸à¨¼à©à¨² ਵਿਸ਼ਵ ਦ੠ਫਾਰਮà©à¨¸à© ਵà¨à©à¨ à¨à¨ªà¨£à© ਮਹੱਤਵਪà©à¨°à¨¨ à¨à©à¨®à¨¿à¨à¨¾ ਨਿà¨à¨¾à¨à¨£ ਲਠà¨à©à¨¨à¨°à¨¿à¨ ਨਿਰਮਾਣ ਨà©à©° à¨à¨¤à¨¸à¨¼à¨¾à¨¹à¨¿à¨¤ à¨à¨°à¨¨ ਲਠਬà©à¨²à¨¾ ਰਹ੠ਹਨ।</p>
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ਮਰੀਜ਼ਾਂ ਦੇ ਪ੍ਰਤੀਨਿਧਾਂ ਅਤੇ ਇਲਾਜ ਕਾਰਕੁਨਾਂ ਦਾ ਕਹਿਣਾ ਹੈ ਕਿ ਦੁਰਲੱਭ ਬਿਮਾਰੀਆਂ ਵਿੱਚ ਪੇਟੈਂਟ ਏਕਾਧਿਕਾਰ ਦੀ ਦੁਰਵਰਤੋਂ ਨੂੰ ਰੋਕੋ
