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<p>à¨à¨¸ ਤà©à¨ à¨à¨²à¨¾à¨µà¨¾, ਦà©à¨°à¨²à©±à¨ ਬਿਮਾਰ੠(à¨à¨¨à¨ªà©à¨¡à©à¨¡à©) 2021 ਲਠਰਾਸ਼à¨à¨°à© ਨà©à¨¤à©,<a rel="nofollow noopener" target="_blank" href="https://rarediseases.mohfw.gov.in/uploads/Content/1624967837_Final-NPRD-2021.pdf"> ਤà¨à¨¨à©à¨à©</a> ਸਿਹਤ ਮੰਤਰਾਲ੠ਠਤ੠ਪਰਿਵਾਰ à¨à¨²à¨¾à¨ ਮੰਤਰਾਲ੠ਦà©à¨à¨°à¨¾, à¨à©±à¨¤à¨®à¨¤à¨¾ ਦ੠à¨à©±à¨¤à¨®à¨¤à¨¾ (à¨à©à¨¸) ਨਾਮà¨à¨¼à¨¦à¨à© à¨à©à¨à¨¦à¨°à¨¾à¨ ਵਿੱਠਦà©à¨°à¨²à©±à¨ ਬਿਮਾਰ੠ਦ੠à¨à¨²à¨¾à¨ ਲਠਪà©à¨°à¨¤à© ਮਰà©à¨à¨¼ ਪà©à¨°à¨¤à© ਮਰà©à¨à¨¼ ਦ੠ਵਿੱਤ੠ਸਹਾà¨à¨¤à¨¾ ਪà©à¨°à¨¦à¨¾à¨¨ à¨à¨°à¨¦à© ਹਨ. à¨à¨¦à©à¨ à¨à¨¿ à¨à¨¸ ਨà©à¨¤à© ਦਾ à¨à¨¦à©à¨¸à¨¼ ਡà©à¨à¨®à¨¡à© ਸਮà©à¨¤ ਦà©à¨°à¨²à©±à¨ ਬਿਮਾਰà©à¨à¨ ਵਾਲ੠ਮਰà©à¨à¨¼à¨¾à¨ ਦਾ ਸਮਰਥਨ à¨à¨°à¨¨à¨¾ ਹà©, ਡà©à¨à¨® 50 ਮਿਲà©à¨ ਨ ਦ੠à¨à©±à¨ ਸà©à¨®à¨¾ ਵਾਲ੠ਵਿਠà¨à¨¤à©à¨à¨ ਦà©à¨à¨ à¨à©à©à©à¨à¨ ਠਤ੠à¨à¨®à¨° ਦà©à¨à¨ à¨à¨²à¨¾à¨ à¨à¨¼à¨°à©à¨°à¨¤à¨¾à¨ ਨà©à©° ਪà©à¨°à¨¾ à¨à¨°à¨¨ ਲਠਠਯà©à¨ ਹ੠ਸà¨à¨¦à¨¾ ਹà©. </p>
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<p>à¨à¨¿à¨¸à¨¼à© ਨ੠à¨à¨¿à¨¹à¨¾, &#8220;ਡà©à¨à¨®à¨¡à© ਮਰà©à¨à¨¼à¨¾à¨ ਲਠਮà©à¨°à© ਮà©à©±à¨ à¨à¨¿à©°à¨¤à¨¾ à¨à¨¹ ਹ੠à¨à¨¿ à¨à¨¹ ਬਹà©-ਠਨà©à¨¸à¨¼à¨¾à¨¸à¨¨à© ਦà©à¨à¨à¨¾à¨², ਫਿà¨à¨¼à©à¨à¨¥à©à¨°à©à¨ªà¨¿à¨¸à¨à¨¾à¨ ਠਤ੠ਪਾà¨à¨ ਬੰà¨à¨²à©à¨ ਨਿ ur ਰà©à¨²à©à¨à© ਸਮà©à¨¤, &#8220;ਹਾਲਾà¨à¨à¨¿, à¨à¨¨à©à¨¹à¨¾à¨ ਸà©à¨µà¨¾à¨µà¨¾à¨ ਨà©à©° à¨à©±à¨ à¨à¨à©à¨¹à¨¾ ਤ੠ਪਹà©à©°à¨à¨£à¨¾ ਮà©à¨¸à¨¼à¨à¨² ਹà©, ਠਤ੠ਲਾà¨à¨¤ ਮਨਾਹ੠ਤà©à¨ à¨à©±à¨à© ਹà©. ਡਾ. à¨à¨¿à¨¸à¨¼à© ਨ੠à¨à¨¿à¨¹à¨¾ à¨à¨¿ ਪਹà©à©°à¨à¨¯à©à¨ à¨à¨ªà¨¾à¨µà¨¾à¨ ਵਿੱਠà¨à¨¾à¨°à¨¤à© ਰਿਸà©à¨¡à©à¨à¨¼ ਦ੠ਨਾਲ-ਨਾਲ ਬà©à¨®à¨¾ ਠਤ੠à¨à¨¨à¨¤à¨ ਸਿਹਤ ਸੰà¨à¨¾à¨² ਪà©à¨°à¨£à¨¾à¨²à©à¨à¨ à¨à¨¿à¨µà©à¨ à¨à¨¿ ਡà©à¨à¨®à¨¡à© ਨà©à©° à¨à¨µà¨° à¨à¨°à¨¦à© ਹਨ. </p>
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ਫੰਡਾਂ ਤੱਕ ਪਹੁੰਚ ਅਤੇ ਭਾਰਤ ਵਿੱਚ ਕਿਫਾਇਤੀ ਉਪਚਾਰਾਂ ਵਿੱਚ ਭਾਰਤ ਵਿੱਚ ਡੂਚੇਨ ਮਾਸਪੇਸ਼ੀ ਡਿਸਸਟ੍ਰੋਪੀ ਕੇਅਰ ਵਿੱਚ ਮਹੱਤਵਪੂਰਨ ਚੁਣੌਤੀਆਂ ਹਨ
